Showing posts with label Buddy Walk. Show all posts
Showing posts with label Buddy Walk. Show all posts
Sunday, February 5, 2012
Billboard Girl
I came across these photos the other day and I don't think I ever posted them. I'd like to place them here so that they're easier to find later on. They were taken by the NDSS photographer in Times Square, just prior to the 2011 NYC Buddy Walk in Central Park.
Thursday, October 20, 2011
More Buddy Walkin'
On October 1st, we attended our very own local Buddy Walk. Imagine that, not having to travel by bus or plane! We didn't even have to drive more than about 10 minutes each way. Craziness.
It was the first day I remember really feeling like fall. And when I say that, I mean it was cold. I realized I had reached another weather milestone. Unlike when we were in The Land of No Seasons, it was going to go from oppressively hot to insanely cold. And I was going to have to learn how to deal with it. Bah.
I know. I'm a wimp.
So, yeah, Buddy Walk morning was brisk.
But it was gorgeous.
Playette got out of the car feeling nice and good.
She's on display, on display, on display.
We checked in, got our bag o' goodies and started with some face painting.
For some reason, Playette's ended up on her hand instead of her face. I'm not sure why I got hooked up and she didn't.
We didn't dwell on that mystery. Instead, it was off to the sidewalk chalk.
Not long after, it was time to start the actual walk. I really love the location of this Buddy Walk. It's scenic, central, and so many people come through there to walk dogs, have parties, work out, or to use the playground that I actually feel like that by having it there, some awareness is raised. People have to ask, "I wonder what's going on over there?" or "Who are all these people in matching shirts?" and I think that's really cool. I know that not every walk can be in a place like that, but it's nice that it can happen.
We did the mile-ish trek around the lake, checking out signs along the way that told stories of people with Ds of all ages. I had considered filling out the form so that Playette could have one, but I got a big, fat case of Something Shiny!Over There! and was distracted enough that I missed the deadline. Go, me.
When our loop was complete, we gorged on pizza and oatmeal pies.
Ok, maybe that was just me with the oatmeal pies, but still. Everyone else could have had some, too. They just need to learn to move quicker.
There was music throughout, with performances by cheerleaders and a dance team. We got to meet new peeps and spend time with friends. Playette also made sure to get her money's worth out of the bounce house.
Speaking of getting one's money's worth out of something...Sheree, if you're reading, please know that we squeezed every moment we could out of those shirts from last year. Both Playette and I were struggling to keep our navels covered. Now that's the mark of a good tee! Still useful and well-loved. We'll surely re-purpose those. Thank you, again. I wish we could be there with y'all again this year. Also? I totally wore those striped socks to the NYC Buddy Walk.
All in all, another great day. So great, in fact, that I came home and crashed for the rest of the night. Party animal. Woot.
It was the first day I remember really feeling like fall. And when I say that, I mean it was cold. I realized I had reached another weather milestone. Unlike when we were in The Land of No Seasons, it was going to go from oppressively hot to insanely cold. And I was going to have to learn how to deal with it. Bah.
I know. I'm a wimp.
So, yeah, Buddy Walk morning was brisk.
But it was gorgeous.
Playette got out of the car feeling nice and good.
She's on display, on display, on display.
We checked in, got our bag o' goodies and started with some face painting.
For some reason, Playette's ended up on her hand instead of her face. I'm not sure why I got hooked up and she didn't.
We didn't dwell on that mystery. Instead, it was off to the sidewalk chalk.
Not long after, it was time to start the actual walk. I really love the location of this Buddy Walk. It's scenic, central, and so many people come through there to walk dogs, have parties, work out, or to use the playground that I actually feel like that by having it there, some awareness is raised. People have to ask, "I wonder what's going on over there?" or "Who are all these people in matching shirts?" and I think that's really cool. I know that not every walk can be in a place like that, but it's nice that it can happen.
We did the mile-ish trek around the lake, checking out signs along the way that told stories of people with Ds of all ages. I had considered filling out the form so that Playette could have one, but I got a big, fat case of Something Shiny!Over There! and was distracted enough that I missed the deadline. Go, me.
When our loop was complete, we gorged on pizza and oatmeal pies.
Ok, maybe that was just me with the oatmeal pies, but still. Everyone else could have had some, too. They just need to learn to move quicker.
There was music throughout, with performances by cheerleaders and a dance team. We got to meet new peeps and spend time with friends. Playette also made sure to get her money's worth out of the bounce house.
Speaking of getting one's money's worth out of something...Sheree, if you're reading, please know that we squeezed every moment we could out of those shirts from last year. Both Playette and I were struggling to keep our navels covered. Now that's the mark of a good tee! Still useful and well-loved. We'll surely re-purpose those. Thank you, again. I wish we could be there with y'all again this year. Also? I totally wore those striped socks to the NYC Buddy Walk.
All in all, another great day. So great, in fact, that I came home and crashed for the rest of the night. Party animal. Woot.
Friday, October 7, 2011
The Rest
So, remember that whole trip to NYC for the Buddy Walk?
Well, when our fun-filled Saturday was over, we still had most of Sunday to spend in the city.
After, once again, housing the breakfast buffet, we headed out. We had decided that we'd keep the day pretty Playette-centric.
First stop, FAO Schwarz.
It was a long walk from our hotel to there, so it was a welcome surprise to come across a market all down 6th Avenue. We stopped at a couple of places, drooled over some of the food being sold (only not partaking because we had just eaten) and ended up with new sunglasses for the bigger two of us. Five dollar bucks for mine. And they're cute. Score!
We eventually made it. I was whooped. Playette was rearing to go.
Check her out. This makes me laugh. "Dreeessss. Dreeessss. Dress! Cheese. (strike a pose)"
I have no idea who taught her that little pointed toe move, but she likes it. A lot.
Once we moved past the dresses, I just kept the camera rolling because she was funny to watch as she explored.
Don't worry. I went back and put everything back.
When I found my fam again, they were here:
Playette and I got down to our socks right after this and did some horrible big piano playing of our own for a while.
We thought about purchasing the floor model for the low, low price of $250K, but decided that eventually owning a home might be the more fiscally responsible option.
We are such dillhole killjoys.
To get the festive mood back, we played around some more before heading over to Rockefeller Plaza to tour an exhibit on education...
(I couldn't resist the scramble board.)
...back to Times Square for a Thai food lunch, people watching...
...and, finally, the pièce de résistance:
My little cell phone camera does this lighted mammoth no justice. Playette was excited as we stood in line (translation: she thought she was too good to wait and tried to bust ahead) and quickly pointed out the car with "Lala" on it.
That stumped us. We kept looking and looking, seeing Dora, well, nowhere.
Finally, I spotted her. Way up at the top, in the tiniest corner of a Nickelodeon-themed car. I can't believe this kid is supposed to need glasses. She wasn't wearing any at the time. Hm.
So, lucky us, for the next 15 minutes, we got to hear "Lala! Lala!"
And of course it's first come, first served. You can't just want "Lala" and get her.
I felt really bad by the time we boarded and missed it by one. She had to watch "Lala" go round and round in front of us the entire time. Womp, womp.
BD and I were ok with what we got though. What self-respecting child of the 80s wouldn't want to rock the Mystery Machine?! I mean, really.
They got a really cute picture of all of three of us in the ride, but, uh...it would have cost more than our lunch so...sorry.
It was another great day. We left there, grabbed our bags from the hotel, I went to get some bagels to bring home, we boarded the bus, and actually had a really decent ride back home.
And that's all I have to say about that.
Now that's it's a week past our local Buddy Walk, I hope I can get that in sometime soon, before we head to our third and final for the year.
Well, when our fun-filled Saturday was over, we still had most of Sunday to spend in the city.
After, once again, housing the breakfast buffet, we headed out. We had decided that we'd keep the day pretty Playette-centric.
First stop, FAO Schwarz.
It was a long walk from our hotel to there, so it was a welcome surprise to come across a market all down 6th Avenue. We stopped at a couple of places, drooled over some of the food being sold (only not partaking because we had just eaten) and ended up with new sunglasses for the bigger two of us. Five dollar bucks for mine. And they're cute. Score!
We eventually made it. I was whooped. Playette was rearing to go.
Check her out. This makes me laugh. "Dreeessss. Dreeessss. Dress! Cheese. (strike a pose)"
I have no idea who taught her that little pointed toe move, but she likes it. A lot.
Once we moved past the dresses, I just kept the camera rolling because she was funny to watch as she explored.
Don't worry. I went back and put everything back.
When I found my fam again, they were here:
Playette and I got down to our socks right after this and did some horrible big piano playing of our own for a while.
We thought about purchasing the floor model for the low, low price of $250K, but decided that eventually owning a home might be the more fiscally responsible option.
We are such dillhole killjoys.
To get the festive mood back, we played around some more before heading over to Rockefeller Plaza to tour an exhibit on education...
...back to Times Square for a Thai food lunch, people watching...
...and, finally, the pièce de résistance:
My little cell phone camera does this lighted mammoth no justice. Playette was excited as we stood in line (translation: she thought she was too good to wait and tried to bust ahead) and quickly pointed out the car with "Lala" on it.
That stumped us. We kept looking and looking, seeing Dora, well, nowhere.
Finally, I spotted her. Way up at the top, in the tiniest corner of a Nickelodeon-themed car. I can't believe this kid is supposed to need glasses. She wasn't wearing any at the time. Hm.
So, lucky us, for the next 15 minutes, we got to hear "Lala! Lala!"
And of course it's first come, first served. You can't just want "Lala" and get her.
I felt really bad by the time we boarded and missed it by one. She had to watch "Lala" go round and round in front of us the entire time. Womp, womp.
BD and I were ok with what we got though. What self-respecting child of the 80s wouldn't want to rock the Mystery Machine?! I mean, really.
They got a really cute picture of all of three of us in the ride, but, uh...it would have cost more than our lunch so...sorry.
It was another great day. We left there, grabbed our bags from the hotel, I went to get some bagels to bring home, we boarded the bus, and actually had a really decent ride back home.
And that's all I have to say about that.
Now that's it's a week past our local Buddy Walk, I hope I can get that in sometime soon, before we head to our third and final for the year.
Monday, October 3, 2011
Buddy Walkin': NYC Part II
First off, HI, ZOE!
Or do you spell it with a "y"?
If so...HI, ZOEY!
Zoe(y) is the nice lady we meet right after walking up the hill to the lovely home base of the NYC Buddy Walk and wandering just a bit. She was there as a volunteer, meant to assist folks just like us who needed some direction.
But what was so unique about this direction-giver is that she recognized us.
Wha?! Little ol' us?
Yup, Zoe(y) reads along here and I really wish I would have taken more time to talk to her then. Since I didn't, I hope this salutation helps to show that you're appreciated. Thank you not only for joining us in our journey, but also for all you do to support the Ds community.
Pretty quickly after that chance meeting, we were able to get all registered and shirted up. The six of us were all part of Team Signing Time, so that meant Playette got to meet up with her idol right away since it was almost time to take a group photo.
They are just too cute.
We even had the good fortune of meeting Rachel's family. Here's Playette with her three daughters, Laura, Leah, and Lucy.
The look on The Littlest's face is her realizing that she's not, in fact, Signing Time's one and only love.
Playette followed Rachel/Signing Time around a lot. So much so that by the time we looked up (and had finished some popcorn and cotton candy, natch), we had missed the start of the actual walking part of the walk. So, the group of us rushed over to the starting point, hoping that we'd figure the path out somehow. Good thing it didn't turn out to be too difficult after all. Plus, the mob moved slow enough that we caught up pretty quickly.
I loved taking in the sites of Central Park. All of the runners made me want to run. It's just such a pretty place in the middle of the big city. It's hard for me not be awe-struck at least once during every trip.
BD was carrying Playette in a backpack while we strolled and she made good use of her time by passing out about 3/4 of the way through the loop.
She woke up in time to get her medal at the finish line though. Check her out, nice and refreshed!
Which was a good thing. Because it was time for the Signing Time performance.
It was wonderful, as expected. Rachel even called out to Playette a couple of times from the stage, which, surprisingly, didn't make her head explode right then and there.
She did have the idea, though, that she belonged on that stage, so I had to go grab her back from trying to do just that at least twice during the concert.
Leah performed with Rachel for most of the show and then Lucy came in for the last song. Which, um, had me bawling.
Couldn't. Help it.
Great, great, great time. We enjoyed it so much, we already have plans to see another concert again very soon.
To keep the momentum going - I think we were all ready to celebrate that the promised rain failed to make even a teensy appearance - the DJ got to work.
My girl loves to bust a move. It's almost like she's challenging BD to a battle at one point in here.
There was lots more move busting and snack eating before we realized that, as usual, we were among the last people there. We know how to shut down a party, yo. We left to the sound of balloons being popped for clean-up.
The rest of the evening was spent noshing on noodles here and slurping on sundaes there.
We even had a Nina Garcia spotting.
All in all, a great day.
Thank you so much to the SkaSka's for joining us!
Or do you spell it with a "y"?
If so...HI, ZOEY!
Zoe(y) is the nice lady we meet right after walking up the hill to the lovely home base of the NYC Buddy Walk and wandering just a bit. She was there as a volunteer, meant to assist folks just like us who needed some direction.
But what was so unique about this direction-giver is that she recognized us.
Wha?! Little ol' us?
Yup, Zoe(y) reads along here and I really wish I would have taken more time to talk to her then. Since I didn't, I hope this salutation helps to show that you're appreciated. Thank you not only for joining us in our journey, but also for all you do to support the Ds community.
Pretty quickly after that chance meeting, we were able to get all registered and shirted up. The six of us were all part of Team Signing Time, so that meant Playette got to meet up with her idol right away since it was almost time to take a group photo.
They are just too cute.
We even had the good fortune of meeting Rachel's family. Here's Playette with her three daughters, Laura, Leah, and Lucy.
The look on The Littlest's face is her realizing that she's not, in fact, Signing Time's one and only love.
Playette followed Rachel/Signing Time around a lot. So much so that by the time we looked up (and had finished some popcorn and cotton candy, natch), we had missed the start of the actual walking part of the walk. So, the group of us rushed over to the starting point, hoping that we'd figure the path out somehow. Good thing it didn't turn out to be too difficult after all. Plus, the mob moved slow enough that we caught up pretty quickly.
I loved taking in the sites of Central Park. All of the runners made me want to run. It's just such a pretty place in the middle of the big city. It's hard for me not be awe-struck at least once during every trip.
BD was carrying Playette in a backpack while we strolled and she made good use of her time by passing out about 3/4 of the way through the loop.
She woke up in time to get her medal at the finish line though. Check her out, nice and refreshed!
Which was a good thing. Because it was time for the Signing Time performance.
It was wonderful, as expected. Rachel even called out to Playette a couple of times from the stage, which, surprisingly, didn't make her head explode right then and there.
She did have the idea, though, that she belonged on that stage, so I had to go grab her back from trying to do just that at least twice during the concert.
Leah performed with Rachel for most of the show and then Lucy came in for the last song. Which, um, had me bawling.
Couldn't. Help it.
Great, great, great time. We enjoyed it so much, we already have plans to see another concert again very soon.
To keep the momentum going - I think we were all ready to celebrate that the promised rain failed to make even a teensy appearance - the DJ got to work.
My girl loves to bust a move. It's almost like she's challenging BD to a battle at one point in here.
There was lots more move busting and snack eating before we realized that, as usual, we were among the last people there. We know how to shut down a party, yo. We left to the sound of balloons being popped for clean-up.
The rest of the evening was spent noshing on noodles here and slurping on sundaes there.
We even had a Nina Garcia spotting.
All in all, a great day.
Thank you so much to the SkaSka's for joining us!
Saturday, October 1, 2011
Buddy Walkin': NYC Part I
Oh, yes. It's me again. I'm crazy back.
This whole working in an office - well, hopefully untainted trailer - thing? It's pretty draining. And hostile. But that's a post for another day.
And days are something I have plenty of, actually.
Because it's October.
Yes, already!
Today marks day one of Down syndrome awareness month.
And with that comes one of my favorite ways to celebrate and advocate: 31 for 21.
Grab This Button
I've been doing this for a while now. I'm thinking since I started blogging back in 2008. The way it works is that I, along with many other bloggers, commit to writing every day in October (31 days) in a show of solidarity and support for those with Trisomy 21 (Ds results from having three of 21st chromosome).
If you're interested in joining in, go see Tricia and sign up. You only need a blog, not a direct connection to Ds.
Even though if you're reading here? Allow me to be your secondary connection. I've checked with Playette and she's cool with that.
LEZGO!
So, my first post is so late. Of course. But right on time for this effort, which means my procrasti-fatigue paid off in a way. I kept meaning and meaning to write, but with so much to say and photos and videos (which you all totally deserve after a pretty desolate September around these parts), I knew it would take time that I just didn't have.
But I got up early today. Just for you. We have our local Buddy Walk this morning, but there's still plenty of time before that. I went to bed at like 9:30 last night so getting up at 6:30 felt like sleeping in and that I better go do something productive already.
Since milking a cow was not an option, here I am.
Last week was an adventure. For anyone that follows me on Twitter, you got a bit of a participation explosion from me last Friday night. Why?
BECAUSE I WAS ROTTING ON A BUS!
What seemed like a semi-good idea in the beginning turned out to be a version of torture for me. I mean, logistically, it made sense. We wanted to go to NYC for the Buddy Walk. Rachel Coleman was performing.
[I kinda like seeing my kid lose her ish for Rachel. And then when she gets extra-stalkery, I have to step in, but still. She loves her some Rachel and Signing Time.
Actually, she doesn't call Rachel by name anymore. She calls her "Signing Time." Which would be rude if it wasn't so damn funny to watch her do. Actually, it is still rude, bur Rachel's very, very cool about it.]
Since moving from California, almost anywhere on the east coast seems close. Because we're not a country away from it, right?
NO.
New York is not close. Trust me. And the drive to get there from here is painfully boring.
And that's why paying someone else to drive us there sounded positively brilliant! Because, hey, we'd leave at midnight, a mile from our house, we'll save money in the end between gas/tolls/parking/wear & tear on the car, we'll surely just wake up, fully-rested, a few blocks from our destination. What could be better?!
The answer is: a plane. A plane would be better.
A plane doesn't take 6.5 hours. A plane would have only cost $30 more per person. A plane doesn't freak you out by taking you the wrong way in the middle of the night. A plane doesn't make that rumprumprump sound that scares you out of your 3 minute nap because the only time you should hear that is when approaching a toll or running off the road and YOU'RE NOWHERE NEAR A TOLL BOOTH!
Yeah, I was grumpy. And because the last rider had spilled coffee in the seat next to BD, Playette was with me most of the time and she was a slightly less than stellar riding companion. Apparently, between the two of us, one of us needed to stand watch, so, as the "adult", I took one for the team. Yay, me. With no sleep, I was a flippin' peach when we finally disembarked in front of the peep show behind Old Navy.
Classy, I know. You're totally jellus.
I must mention the other reasons we decided to go. Some of our friends have an 18-month-old who also loves Signing Time and since they live in NY, we'd be able to enjoy the day with them. Plus, Central Park just sounded like an awesome place to have a Buddy Walk.
Aaaand, Playette's picture was chosen for the NDSS video in Times Square.
Had to be there. Had to.
Don't know about the video? Here's a clip from the official press release:
"The photo...was selected from over 1,200 entries in the NDSS worldwide call for photos. Over 200 photographs will appear in the video, which will be shown on the larger-than-life MTV plasma screen, located in the heart of Times Square."
Yeah, we had lots of reasons to go.
And, honestly, after that bus ride, things got much better.
We got our bags and walked the short distance to the hotel. Playette was thrilled to get her land legs back and had a ball zipping down the clean and mostly-empty city streets. She did find it necessary to point out to me the people that were sleeping though. I wasn't quite ready to explain homelessness.
When we got to the hotel, they had a room ready (bless them!) and extended the breakfast buffet to us (totally not required, but greatly appreciated). Grateful, we hustled upstairs and took naps before waking up, getting dressed in our gear courtesy of Sheree, housing the buffet, and walking to Times Square.
When we got there, we immediately picked out our peeps, posted up underneath the large screen with the gold frame around it that reminded me of the mirror my mother loved so much when I was in high school and college and that I kept in my own home for many years.
Yup, right between T.O. and LaLa. That was the spot. Superstah!
I took that last picture on Sunday though. Because on Saturday, I was too busy running my mouth to all the people around us like Ben's family, out celebrating his first birthday in full force, and Jewel's whole group of Gems. They really came out to represent for those kids and I loved seeing how much support they had.
I'm doing some thinking right now and choosing not to write it for the world to read, but if I didn't write something in this space, I'd be mad at myself. Infer whatever you wish. How's that?
Anyway.
The video lasted about 20 minutes and Playette showed up right in the middle, with her cute self. I was riveted the entire time because I could not, for the life of me, remember which photo I had submitted, so I was freaking out that maybe I'd miss her. Really? I thought I wouldn't recognize my kid? I'm such a wack sometimes.
When the video is available online, I'll share the link.
If my mother were alive, I probably would have gotten popped right in Times Square for submitting a picture of Playette sitting so unladylike. Oops. Still adorbs though, right? I promise to keep her out of clear heels, 'k, Ma?
Our friends arrived just as the first showing of the video was wrapping up, so we watched the second one, too, before heading to the buses that would take us to the main event.
This seems like the perfect place for a cliffhanger, soooo...
Stay tuned for Part II!
And, if you're so inclined, any donations to any Buddy Walk are tax deductible. If you go to one in your area, let me know. They're fun. We went to three last year and will do the same this year.
If you work for the Feds, both NDSS and NDSC are listed to receive CFC contributions.
This whole working in an office - well, hopefully untainted trailer - thing? It's pretty draining. And hostile. But that's a post for another day.
And days are something I have plenty of, actually.
Because it's October.
Yes, already!
Today marks day one of Down syndrome awareness month.
And with that comes one of my favorite ways to celebrate and advocate: 31 for 21.
Grab This Button
I've been doing this for a while now. I'm thinking since I started blogging back in 2008. The way it works is that I, along with many other bloggers, commit to writing every day in October (31 days) in a show of solidarity and support for those with Trisomy 21 (Ds results from having three of 21st chromosome).
If you're interested in joining in, go see Tricia and sign up. You only need a blog, not a direct connection to Ds.
Even though if you're reading here? Allow me to be your secondary connection. I've checked with Playette and she's cool with that.
LEZGO!
So, my first post is so late. Of course. But right on time for this effort, which means my procrasti-fatigue paid off in a way. I kept meaning and meaning to write, but with so much to say and photos and videos (which you all totally deserve after a pretty desolate September around these parts), I knew it would take time that I just didn't have.
But I got up early today. Just for you. We have our local Buddy Walk this morning, but there's still plenty of time before that. I went to bed at like 9:30 last night so getting up at 6:30 felt like sleeping in and that I better go do something productive already.
Since milking a cow was not an option, here I am.
Last week was an adventure. For anyone that follows me on Twitter, you got a bit of a participation explosion from me last Friday night. Why?
BECAUSE I WAS ROTTING ON A BUS!
What seemed like a semi-good idea in the beginning turned out to be a version of torture for me. I mean, logistically, it made sense. We wanted to go to NYC for the Buddy Walk. Rachel Coleman was performing.
[I kinda like seeing my kid lose her ish for Rachel. And then when she gets extra-stalkery, I have to step in, but still. She loves her some Rachel and Signing Time.
Actually, she doesn't call Rachel by name anymore. She calls her "Signing Time." Which would be rude if it wasn't so damn funny to watch her do. Actually, it is still rude, bur Rachel's very, very cool about it.]
Since moving from California, almost anywhere on the east coast seems close. Because we're not a country away from it, right?
NO.
New York is not close. Trust me. And the drive to get there from here is painfully boring.
And that's why paying someone else to drive us there sounded positively brilliant! Because, hey, we'd leave at midnight, a mile from our house, we'll save money in the end between gas/tolls/parking/wear & tear on the car, we'll surely just wake up, fully-rested, a few blocks from our destination. What could be better?!
The answer is: a plane. A plane would be better.
A plane doesn't take 6.5 hours. A plane would have only cost $30 more per person. A plane doesn't freak you out by taking you the wrong way in the middle of the night. A plane doesn't make that rumprumprump sound that scares you out of your 3 minute nap because the only time you should hear that is when approaching a toll or running off the road and YOU'RE NOWHERE NEAR A TOLL BOOTH!
Yeah, I was grumpy. And because the last rider had spilled coffee in the seat next to BD, Playette was with me most of the time and she was a slightly less than stellar riding companion. Apparently, between the two of us, one of us needed to stand watch, so, as the "adult", I took one for the team. Yay, me. With no sleep, I was a flippin' peach when we finally disembarked in front of the peep show behind Old Navy.
Classy, I know. You're totally jellus.
I must mention the other reasons we decided to go. Some of our friends have an 18-month-old who also loves Signing Time and since they live in NY, we'd be able to enjoy the day with them. Plus, Central Park just sounded like an awesome place to have a Buddy Walk.
Aaaand, Playette's picture was chosen for the NDSS video in Times Square.
Had to be there. Had to.
Don't know about the video? Here's a clip from the official press release:
"The photo...was selected from over 1,200 entries in the NDSS worldwide call for photos. Over 200 photographs will appear in the video, which will be shown on the larger-than-life MTV plasma screen, located in the heart of Times Square."
Yeah, we had lots of reasons to go.
And, honestly, after that bus ride, things got much better.
We got our bags and walked the short distance to the hotel. Playette was thrilled to get her land legs back and had a ball zipping down the clean and mostly-empty city streets. She did find it necessary to point out to me the people that were sleeping though. I wasn't quite ready to explain homelessness.
When we got to the hotel, they had a room ready (bless them!) and extended the breakfast buffet to us (totally not required, but greatly appreciated). Grateful, we hustled upstairs and took naps before waking up, getting dressed in our gear courtesy of Sheree, housing the buffet, and walking to Times Square.
When we got there, we immediately picked out our peeps, posted up underneath the large screen with the gold frame around it that reminded me of the mirror my mother loved so much when I was in high school and college and that I kept in my own home for many years.
Yup, right between T.O. and LaLa. That was the spot. Superstah!
I took that last picture on Sunday though. Because on Saturday, I was too busy running my mouth to all the people around us like Ben's family, out celebrating his first birthday in full force, and Jewel's whole group of Gems. They really came out to represent for those kids and I loved seeing how much support they had.
I'm doing some thinking right now and choosing not to write it for the world to read, but if I didn't write something in this space, I'd be mad at myself. Infer whatever you wish. How's that?
Anyway.
The video lasted about 20 minutes and Playette showed up right in the middle, with her cute self. I was riveted the entire time because I could not, for the life of me, remember which photo I had submitted, so I was freaking out that maybe I'd miss her. Really? I thought I wouldn't recognize my kid? I'm such a wack sometimes.
When the video is available online, I'll share the link.
If my mother were alive, I probably would have gotten popped right in Times Square for submitting a picture of Playette sitting so unladylike. Oops. Still adorbs though, right? I promise to keep her out of clear heels, 'k, Ma?
Our friends arrived just as the first showing of the video was wrapping up, so we watched the second one, too, before heading to the buses that would take us to the main event.
This seems like the perfect place for a cliffhanger, soooo...
Stay tuned for Part II!
And, if you're so inclined, any donations to any Buddy Walk are tax deductible. If you go to one in your area, let me know. They're fun. We went to three last year and will do the same this year.
If you work for the Feds, both NDSS and NDSC are listed to receive CFC contributions.
Sunday, October 24, 2010
Turkey
Today, we attended our third walk this month in support of Down syndrome Awareness. It was also our third year at the Bay Area Buddy Walk.
It's not that I just loooove Ds so much that I feel the need to walk in circles in three different cities for it. (I've had people ask me, "Why so many?") What I do love are the people. I love the sense of belonging. I love the bounce houses and live entertainment and the self-advocates and, well, the lunches are greatly appreciated, too. Plus, for us, this year, the timing just worked out really well so that we could attend all three.
Since Sheree made it nice and easy for us, Playette and I got all dolled up in our finest walking outfits. They were a huge hit. Again.
Prior to last week, the most dressed up we got was to put the event t-shirt on over what were already wearing, so this was a bit of a change.
Honestly, I didn't mind wearing my tutu again one little bit. I don't think Playette did either. There's just something about a tutu, y'all. It makes me feel even more sassy than usual.
We had a great time. There was threat of heavy downpours, but, for the most part, we stayed dry. We walked, we saw friends, we ate pizza and cookies, only one of us jumped in the bounce house (boo!), and we won Signing Time stuff in the raffle (yay!)
After everything was over and we were about to head home, Playette made it halfway to the car before she decided that she absolutely needed to open the ST bundle right then and there. I was tired, so I relented.
Our friend, Jen, was also kind enough to give me this necklace she made and I just love it. I'll be sure to wear it proudly in the years to come, as we move from city to city, as a reminder of the great friends we've made along the way via our Littlest.
BTW, Jen? Playette is already singing along to that cd. ;-)
It's not that I just loooove Ds so much that I feel the need to walk in circles in three different cities for it. (I've had people ask me, "Why so many?") What I do love are the people. I love the sense of belonging. I love the bounce houses and live entertainment and the self-advocates and, well, the lunches are greatly appreciated, too. Plus, for us, this year, the timing just worked out really well so that we could attend all three.
Since Sheree made it nice and easy for us, Playette and I got all dolled up in our finest walking outfits. They were a huge hit. Again.
Prior to last week, the most dressed up we got was to put the event t-shirt on over what were already wearing, so this was a bit of a change.
Honestly, I didn't mind wearing my tutu again one little bit. I don't think Playette did either. There's just something about a tutu, y'all. It makes me feel even more sassy than usual.
We had a great time. There was threat of heavy downpours, but, for the most part, we stayed dry. We walked, we saw friends, we ate pizza and cookies, only one of us jumped in the bounce house (boo!), and we won Signing Time stuff in the raffle (yay!)
After everything was over and we were about to head home, Playette made it halfway to the car before she decided that she absolutely needed to open the ST bundle right then and there. I was tired, so I relented.
Our friend, Jen, was also kind enough to give me this necklace she made and I just love it. I'll be sure to wear it proudly in the years to come, as we move from city to city, as a reminder of the great friends we've made along the way via our Littlest.
BTW, Jen? Playette is already singing along to that cd. ;-)
Monday, October 18, 2010
Steppin' Up!
On Saturday, Playette and I drove to the Sacramento area to spend some more time with our favorite Phamily.
We arrived just in time to see Operation Spirit in full effect. I was quickly taught how to make a tutu. I was quite proud of myself as I am usually what is considered the opposite of crafty.
I did not, in fact, have to be taught how to eat all of the wonderful spread of food that was on display.
That? I am good at.
There was glitter everywhere. Signs and large, decorated "Gs" (for Team Gabalicious). Streamers and curly strands for the wagon. Matching t-shirts and accessories for all.
Well actually, there weren't quite matching t-shirts for all.
Sheree went out of her way to have slightly different shirts made for our team-within-a-team, "Playette's Peeps."
The walk itself was a lot of fun. The girls were gorgeous and as we walked, we cheered and sang and danced.
Last year, Team Gabalicious had won the "Most Spirited" award. What a fun thing to aim for, right? I'm all for getting festive and showing people that we, the friends and families of people with Down syndrome, know how to celebrate in the name of increasing awareness.
It was also nice to see so many other families again that I have gotten to know over the last couple of years. We all have this amazing bond based on the little something extra that our kids have in common.
Ds Walk #2 of 2010 complete.
Ds Walk #1 of 2010
We arrived just in time to see Operation Spirit in full effect. I was quickly taught how to make a tutu. I was quite proud of myself as I am usually what is considered the opposite of crafty.
I did not, in fact, have to be taught how to eat all of the wonderful spread of food that was on display.
That? I am good at.
There was glitter everywhere. Signs and large, decorated "Gs" (for Team Gabalicious). Streamers and curly strands for the wagon. Matching t-shirts and accessories for all.
Well actually, there weren't quite matching t-shirts for all.
Sheree went out of her way to have slightly different shirts made for our team-within-a-team, "Playette's Peeps."
The walk itself was a lot of fun. The girls were gorgeous and as we walked, we cheered and sang and danced.
Last year, Team Gabalicious had won the "Most Spirited" award. What a fun thing to aim for, right? I'm all for getting festive and showing people that we, the friends and families of people with Down syndrome, know how to celebrate in the name of increasing awareness.
It was also nice to see so many other families again that I have gotten to know over the last couple of years. We all have this amazing bond based on the little something extra that our kids have in common.
Ds Walk #2 of 2010 complete.
Ds Walk #1 of 2010
Saturday, October 16, 2010
Oh, how times have changed.
I can't help but think back to three years ago, when I was invited to my first Buddy Walk.
"What the heck is a Buddy Walk?"
"Oh."
"Why would I want to go to that?" I asked, four-month-old baby resting quietly in my arms.
"Lots of people with Down syndrome? Um. No. I don't think we can make it."
In my head, I was thinking of how uncomfortable I'd surely be. I could picture myself leaving in tears. I would probably stare and might say something inappropriate. I wouldn't be able to be social and enjoy myself. Why would they do something like this anyway? It couldn't possibly be fun for anyone. How sad. All these people, gathering in a park or something, pretending to have a good time.
=====
This month alone we'll have gone to three walks in the effort to raise Down syndrome awareness.
It is fun. For the entire family and our friends.
I love it.
And I mean it.
Click on the links above if you're interested in learning more and/or attending a Buddy Walk. Not all areas have a BW, but there are similar events by other names that you can find by searching out your local Ds group. For example, in WI, we attended DSAW - Fox Cities' "Down Syndrome Awareness Walk" and Sacramento's Down Syndrome Information Alliance calls their walk "Step Up for Down Syndrome."
"What the heck is a Buddy Walk?"
"Oh."
"Why would I want to go to that?" I asked, four-month-old baby resting quietly in my arms.
"Lots of people with Down syndrome? Um. No. I don't think we can make it."
In my head, I was thinking of how uncomfortable I'd surely be. I could picture myself leaving in tears. I would probably stare and might say something inappropriate. I wouldn't be able to be social and enjoy myself. Why would they do something like this anyway? It couldn't possibly be fun for anyone. How sad. All these people, gathering in a park or something, pretending to have a good time.
=====
This month alone we'll have gone to three walks in the effort to raise Down syndrome awareness.
It is fun. For the entire family and our friends.
I love it.
And I mean it.
Click on the links above if you're interested in learning more and/or attending a Buddy Walk. Not all areas have a BW, but there are similar events by other names that you can find by searching out your local Ds group. For example, in WI, we attended DSAW - Fox Cities' "Down Syndrome Awareness Walk" and Sacramento's Down Syndrome Information Alliance calls their walk "Step Up for Down Syndrome."
Friday, October 15, 2010
As Requested
Oh, wait, before I give you the intro to the video, that whole New Dora thing? Ergh. This morning, Playette revolted.
But.
The point that at least it goes by faster is a good one. And it is easier to see her two front teeth when she's crying.
Anyway.
So, one of my friends loved seeing the videos of Playette and requested more. I will try to oblige with some new material in the future, but, to tide you over, here's a favorite clip of mine that Michelle took at the Ds Awareness Walk in WI (co-starring Lily!). I am so glad she caught this because I, very absentmindedly, left my camera at her house. Of course, I didn't know that we'd be called up on stage for the "Silly Pizza" song (!), but still, I'm kicking myself. Thank goodness for friends.
But.
The point that at least it goes by faster is a good one. And it is easier to see her two front teeth when she's crying.
Anyway.
So, one of my friends loved seeing the videos of Playette and requested more. I will try to oblige with some new material in the future, but, to tide you over, here's a favorite clip of mine that Michelle took at the Ds Awareness Walk in WI (co-starring Lily!). I am so glad she caught this because I, very absentmindedly, left my camera at her house. Of course, I didn't know that we'd be called up on stage for the "Silly Pizza" song (!), but still, I'm kicking myself. Thank goodness for friends.
Friday, October 8, 2010
Day 1 in WI: Promised Pics
Since I am legalistic, this is yesterday's post (I passed out on the couch last night before I got a chance to get it published). I still have to write something for today. 31 or bust!
So, while the two 3s were making their way to Friendville and Lily was temporarily keeping a safe distance...
...Michelle and I, thanks to her wonderful husband taking charge of all five children, made out way to the Elk Lodge to hear Rachel Coleman give a presentation.
If you don't know who Rachel is, you've obviously never been to my house. In my house, and many others, she is an icon. She is, in her words, "a rock star to preschoolers." And it's true!
Though, I must admit, I love me some Rachel as well.
She has played a significant role in my child's development. The program that she co-created with her sister, Emilie Brown, has brought communication into our home well before Playette was able to speak. And that's HUGE, people. HUGE.
So, not only does my kid have a second language that connects her to so many more people, she can tell us her wants, needs, and desires, and has been able to do so in increasing complexity for a long time now.
Plus, she can impress people with her mad signing skillz. I can't say that I don't enjoy that. Take that, stereotypes! My kid can learn, and teach, yo!
Rachel told that room full of parents her story and how it related to the creation of Signing Time. She shared with us how she dealt with unexpected challenges. She had me BAWLING. And then she sang, which made it that much more messy for me.
It was a great messy though. I'm so glad that I had that opportunity.
After a lot of chatting and snacking once the presentation was done, Michelle and I headed back to the house. But first, we stopped at the grocery store, where I discovered that that whole Packer thing?
It's serious.
Not only was the whole store decked out in the signature colors, but so were the snacks.
Check out these Rice Krispie treats.:
How can you not love people that color coordinate their snacks?
I have to wonder what the cashier was thinking when we stopped to take this pic. I mean, it was midnight and I was being a total tourist.
That reminds me. I look really sleepy in this pic, huh? There's a good reason for that. I had had a long couple of days. In my next post, I'll tell you why.
So, while the two 3s were making their way to Friendville and Lily was temporarily keeping a safe distance...
...Michelle and I, thanks to her wonderful husband taking charge of all five children, made out way to the Elk Lodge to hear Rachel Coleman give a presentation.
If you don't know who Rachel is, you've obviously never been to my house. In my house, and many others, she is an icon. She is, in her words, "a rock star to preschoolers." And it's true!
Though, I must admit, I love me some Rachel as well.
She has played a significant role in my child's development. The program that she co-created with her sister, Emilie Brown, has brought communication into our home well before Playette was able to speak. And that's HUGE, people. HUGE.
So, not only does my kid have a second language that connects her to so many more people, she can tell us her wants, needs, and desires, and has been able to do so in increasing complexity for a long time now.
Plus, she can impress people with her mad signing skillz. I can't say that I don't enjoy that. Take that, stereotypes! My kid can learn, and teach, yo!
Rachel told that room full of parents her story and how it related to the creation of Signing Time. She shared with us how she dealt with unexpected challenges. She had me BAWLING. And then she sang, which made it that much more messy for me.
It was a great messy though. I'm so glad that I had that opportunity.
After a lot of chatting and snacking once the presentation was done, Michelle and I headed back to the house. But first, we stopped at the grocery store, where I discovered that that whole Packer thing?
It's serious.
Not only was the whole store decked out in the signature colors, but so were the snacks.
Check out these Rice Krispie treats.:
How can you not love people that color coordinate their snacks?
I have to wonder what the cashier was thinking when we stopped to take this pic. I mean, it was midnight and I was being a total tourist.
That reminds me. I look really sleepy in this pic, huh? There's a good reason for that. I had had a long couple of days. In my next post, I'll tell you why.
Tuesday, October 20, 2009
Buddy Walk '09
The Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome. Today, the Buddy Walk program is supported nationally by the NDSS and organized at the local level by parent support groups, schools, and other organizations and individuals.
We went to our second Bay Area Buddy Walk on October 10th. It was a gorgeous day and this year...we had a team! Malea's Crew. Last year, it was just The Mama and The Littlest so we more than doubled our participation. WOOT!
We also had several friends and family members who were with us virtually, sending good wishes and donating when possible. Check out our ticker at the top of the sidebar. I think we've done great so far!
All money raised in relation to our Buddy Walk supports activities provided by the Silicon Valley Down Syndrome Network, a group that has served as a great resource for our family.
The best part of this Buddy Walk, though? Playette walked!
Last year, as we were completing the one mile loop in the rain, with her in the stroller, I told her, "Next year, you're walking." That was really my hope for her more than it was a command. At that point, she was 16 months old and I could only imagine when she would start walking on her own.
Check out how far she went:
I'm very proud of her 1/2 mile...she's one step close to being theme park bound. [She has to work herself up to 5 miles (with no whining, ha!) before we can all go to Disney together. Don't worry though. If we're at next year's NDSC conference together and she hasn't reached her goal yet? We may let you borrow her so that she can see the Magic Kingdom. ;-)]
And here she is enjoying the band (and the camera) early in the day:
Many thanks to Dan for taking those great photos.
BD wanted me to make sure that I added this one in. There were informational signs all along the walk.
We had a great time. I don't think we'll still be in this area next year and I'll miss this great group of folks for sure.
Looking Back: Buddy Walk '08
Monday, June 22, 2009
Already?
Buddy Walk time is quickly approaching.
I know, I know...summer's just starting and all. But anyone involved in planning a Buddy Walk will tell you that October will be here before you know it.
When I was in NY last month, I spent some time in both Times Square and Central Park. As I stood there amongst the wonderful chaos and peacefulness of it all, I couldn't help but think about the Buddy Walk. How cool would it be to participate in such an event in NYC? To be with all those people and see the video up on the screen in person would be awesome.
One day, we'll have to find out.
But, until then, there's always the possibility of representing in another way.
Until July 15th, photos are being accepted for the annual Ds awareness video in Times Square.
If you're interested, please be sure to submit a favorite photo.
Contest info
2008 Video
I know, I know...summer's just starting and all. But anyone involved in planning a Buddy Walk will tell you that October will be here before you know it.
When I was in NY last month, I spent some time in both Times Square and Central Park. As I stood there amongst the wonderful chaos and peacefulness of it all, I couldn't help but think about the Buddy Walk. How cool would it be to participate in such an event in NYC? To be with all those people and see the video up on the screen in person would be awesome.
One day, we'll have to find out.
But, until then, there's always the possibility of representing in another way.
Until July 15th, photos are being accepted for the annual Ds awareness video in Times Square.
If you're interested, please be sure to submit a favorite photo.
Contest info
2008 Video
Monday, October 6, 2008
Buddy Walk #1
To put it simply, I'm glad I went.
Playette and I were slow to leave the house and arrived about 45 minutes later than I planned. (So leaving 15 minutes before the start time when you live over an hour away doesn't work? Noted.) The good thing was that we arrived just as the announcement was being made for folks to line up to walk. I was so afraid we'd missed that part.
I had shamelessly begged online for a buddy for us to walk with, but failed to arrange for a meeting place or time. Good thing we went to the monthly family dinner a while back because we were recognized after not too long and attached ourselves to a team.
Yeah, a team. Who knew? Well, I had kinda heard about that, but still, I really had no idea. Matching t-shirts, banners, buttons, flags, wow. I felt bad for a second, but then got over it. We were there, after all.
I put on my Buddy Walk t-shirt and started to walk the 1-mile loop around the park. I thought it was beautiful. The lake, the...
There was a bounce house, a slide, popcorn, cotton candy, snowcones, fire trucks, police cars, and music.
We danced (reggae nursery rhymes! - loved it!), we ate, we played instruments, met new friends. It was very cool.
I spent some of my time with a family who brought their newest addition, an adorable 2 week old baby boy. There was also quality time spent with with a very engaging thirteen year old young woman. Both of those conversations made me so glad that I came.
Click here for official photos.
(I found us on pages 1 and 8.)
I'll post a link to all of my photos later.
BD should be home soon!
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