Seriously Stubborn

I'm realizing that it's difficult for some people to believe that I'm still pregnant.

But I am. 41 +1.

So I asked BD to take this photo of me yesterday as we were on our way in to my appointment to check on how our newbie is doing.


Apparently, he's just fine. He rocked the ultrasound and non-stress test. The only "issue" is that he's measuring big. I know it's just a guesstimate and all, but petite mama + big, comfy boy that doesn't appear to have any immediate plans to introduce himself brought out some concerns amongst my medical support staff.

That made yesterday a tad bit stressful for me.

Today is better. I have smart and caring friends that are earning their keep with reassurance and confidence in me.

And, also, I'm healthy. Doing great, in fact. No complaints other than the stuff that's par for the course at this point in any pregnancy. I still fit my wedding rings. I'm actually begging for some discomfort of the labor variety.

I still have every hope that Dez will come and greet us on his own, but if not, the interventions begin on Sunday night. Boo.

Just hope for the best, 'k?

Um, hi...

For those of you that are sticking around and showing me grace through this very dry patch of writer's block, I thank you.

So. What have we been up to lately?

Playette knows the baby is coming. It's strange interesting to watch her behaviors change because it's like she has this 6th sense thing happening. I almost want to ask her when it's going to rain next. And for some lottery picks.

I do tend to forget that even though her speech is delayed that she understands so much more. I mean, honestly, Self...it's not like we don't talk about the baby coming when we're around her. Duh.

But, yet, still, I sit here amazed. Sometimes she's great, with the kissing of the belly and the "good morning/night, Dez*"s and then other times she's a pure-dee wack-a-loon and I have to worry about getting a call from school that's she's not welcome back the next day.

Which reminds me. I went to see Kathie Snow speak back on the 15th. At the end of her amazing talk, I spoke up during the Q&A. I thanked her for reminding me that it's ok for my kid to have a bad day. I struggle with that. A lot.

Talk about a ton of pressure to put on a four-year-old.

It's almost as if I expect perfection out of her, something that her classmates' parents probably don't worry about lofting upon the shoulders of their own kids because they are "currently undiagnosed" and no one feels like those littles need to be the [booming voice] Posterchildren of Successful Inclusive Practices [/booming voice].

But I do.

And good grief. I should really stop.

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Last week, BD went to NYC for "work" work. That was also my first week of not having to go in to my own job-away-from-home. Even though that meant I had more free time during the day while Playette was in school, being 37-38 weeks pregnant also meant that I was also scared that my child would not eat of be bathed for 4 days while he was gone.

Because my energy and motivation level these days? HA!

Thankfully, my aunt came to town to help me out. She also kept me busy, which was ideal.

Things got done! The house was clean! We ate! Playette had baths!

Proof that things got done:


First of all, I never would have thought to do such a thing as put together little outfits. And, second, to have them all cleaned (and ironed!) and ready to go on the changing table like that? HAHAHAHAHAHA. Yeah, right. I can barely remember where BD keeps the iron.

It was pretty awesome and I was sooo grateful. I still am. I hope we didn't scare her off and that she really will come back after the babe is here.

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Now, after all of that, we actually give off the illusion of being "ready."

It's still so mind-boggling to me that I have no idea when this baby is going to come. I mean, today is Monday. I'll be 39 weeks on Wednesday. At 39 weeks with Playette, I was in the hospital being induced.

Looking back, it was awful. Not the worst thing ever in the grand scheme of what can happen in life, sure, but not what I have in mind for this time at all. I pretty much look at what I want now and can say "the opposite of what happened last time" and it works out great in my head.

And with that comes waiting.

So it could be tonight. It could be next week. It could be mid-April. I just don't know. And I have to be ok with that on some level.

In the meantime, I need to spend my days doing something other than sitting on the couch watching Good Burger while texting my friends. I know this much is true.

Ok, so I also watched Waiting for Superman today. That has to be worth something. (scared the crap out of me, it did)

And then I went for a walk this afternoon. Two miles. I used to run it. Today I huffed and puffed and shuffled through it. But I survived. I may even try that again tomorrow.

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Since you're so patient with me, here is my gift to you. A belly pic!

Wait. Make that a few.

And it's the real deal, yo. You can actually see the belly.

Because while digging through bins in the attic, I came across this gem of a Wal-Mart tee that I bought in New Orleans when I was pregnant with Playette.

Whilst knocked up is pretty much the perfect time for wearing a shirt like this, I think. Showing a little skin makes it that much more classy.





* Dez is what we call the newbie. The nickname started a while ago and then stuck. Even though BD said it never would. Neener Neener. Basically, it's just BD's initials and since we can't seem to agree on a name, Dez he shall be until we come up with something better. If we ever come up with something better, that is.

Billboard Girl

I came across these photos the other day and I don't think I ever posted them. I'd like to place them here so that they're easier to find later on. They were taken by the NDSS photographer in Times Square, just prior to the 2011 NYC Buddy Walk in Central Park.

Another Month Bites the Dust

I have had this song stuck in my head for like a week.



You're welcome.

They used to play this at the church I went to whenever a couple got engaged. I thought that was like the best thing ever. Everyone cheered and it turned into a party. Not very traditional, I know. Shoot, it was stuff like that that got me in the door and kept me there so long. By the time I was betrothed to BD, they didn't do it anymore. Boo. I still can't help but think of that every time I hear the song though.

Anyway. So I've been gone. Again. Blah blah blah.

I really do have good reasons. Wanna hear 'em? Here they go:

1. I know I've posted since then, but I never really elaborated about our Christmas trip to the Dominican Republic. It was rather awesome, if I do say so myself. We didn't get to go away last year since we were in the midst of a post-deployment cross-country move. And then, over the summer, we were quite The Busy. BD was working and we were hosting company weekend after weekend. It was pretty chock full of activity and we hardly missed getting our passports stamped between beaches, lakes, and San Antonio.

So, yeah. The DR was a great get-away. I slept on the beach a lot.


And we ate a lot. Playette made plenty of friends everywhere she went. We forgot we had brought an actual camera until the last two days. Whoopsie! But I did get this cute little clip of her with my phone after the resort staff handed out gifts to all of the kids. It was an impressive stunt, even after a parade complete with brass band and landing Santa on the beach in a helicopter.

I'm not even kidding.


Obviously, I'll need to devote a post to this trip.

2. Right after we got back, it was off to DC for an amazing New Year's Eve wedding of a very good friend. Can you say Best Wedding Evah? Yeah. Cause it was. From the goody bag in the room (complete with a red velvet Georgetown Cupcake) to the steel drum playing during the cocktail hour to the fun photo booth to the hip hop violinist while we dined on amazing food. I totally made myself stay up until the music stopped at 2am.

Again, I'm not kidding. Hip. Hop. Violinist. It was all sorts of amazing.


I wore my sparkly shoes for the occasion and was feeling super cute, belly and all. Even though several people were concerned that I'd be giving birth on the dance floor. Apparently, I am very large. It's nice that people remind me of that, isn't it?

3. The next morning, we had to hop out of the ever-so-comfortable hotel bed and make our way to pick up Playette from her sleepover with my friend's kids so that we could get home as soon as possible.

Why?

Because I had to fly to Tennessee at noon on Monday (yes, the holiday) to start my two weeks of annual training with the Navy Reserve. Highlight: I got to break out the khaki tent, my affectionate name for the maternity uniform. That thing is not only super comfy, but totally unflattering. And it has no pockets, so it's also impractical. Woot!

I met some great people, had a few fantastic meals, learned a lot, saw the Globetrotters, went to the National Civil Rights Museum, skipped Graceland on Elvis's birthday, and more. If my family had been there, I would have been solid. But they weren't, so I came home as soon as the opportunity was made available to me.

BD did a fantastic job of holding down the fort. And Playette. Of course I mean that figuratively. Maybe.

4. I got home and slept. Because, ironically, while I was busy doing items 1-3, time did not stand still and somehow I crossed over into my third trimester of growing a human. After 12-13 hour days of work while I was away, coming home to my own bed was absolute heaven. The adrenaline rush that kept me vertical through the training faded right along with the second trimester and my body did all it could to recuperate before I had to return to work on Tuesday.

5. And then, on top of everything, work is a boiling pot of stress. I hate it. Did I just write that? I think I did. I really need to do something about this. It's been bad since pretty much Day 1 and here we are five months later and I'm still there.

I have a goal in mind and I've pretty much met it, so I'm about one stupid comment away from being back at home full-time again. Little do they know. Or maybe now they do.

I. Don't. Care.

6. If there's another excuse in there somewhere - and who knows, maybe there was something else - I can't even remember.

But I'm here now.

And I'm feeling big scared great, so let's just ride that out for a while, shall we?

Things are going to drastically change soon enough.

Hold me?

From: Us, To: You

Outtakes

If you liked the shots taken by Pretend Jen for our participation in the NDSS Signature Tee fundraiser, perhaps you'll enjoy these as well. If that link doesn't work for you, try this one.

Again, we had a ball and are so grateful for having had the opportunity to play for a great cause.

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I feel like I have so much to say in order to fill you in on what I've been so quiet about these last few many months.

I will!

But first, there is a party with free food calling my name.

I'm a sucker for free food, yo.

And, of course, the kid should have fun.

Maybe I should have written that first? That's what a better mom would have done, right?

HAHAHAHAHA! And now I'm gonna have two! Watch out, fellow MotY nominees.

It's Time!

What time is it, you ask?

It's t-shirt time!

You've been waiting so patiently for me to dish on what we were up to at the beach and this is it:

NDSS Signature T-shirts Are Here!

We are proud to unveil a collection of men’s, women’s and kids’ t-shirts featuring 3:21 on the front and the NDSS logo on the back.

Adult shirts are $25 each and kids’ shirts are $15 each. For each signature shirt purchased, $5 will be donated to NDSS.

Men:
Guys will love the fit and feel of this t-shirt, made from 100% cotton with anti-pilling finish. It is so comfortable it will become an instant favorite, and its subtle message will make you feel good about wearing it as often as you wear your favorite jeans (okay, maybe not that often).

Women:
The quality and fit of this t-shirt will make it the one that spends more time outside your drawer than in it, and will help you spread the word that people with Down syndrome are valued and loved members of our society. This flattering style and color options suit all sizes and skin tones and is made from 95% cotton, 5% lycra with an anti-pilling finish.

Kids:
Whether they're learning to tell time or setting their own alarm clocks, kids will love knowing the 'secret' meaning behind 3:21 and will enjoy being the one to share this info with their friends. It's always the right time to learn to accept and include someone with Down syndrome. These t-shirts are made from 100% cotton with anti-pilling finish.

Rhyme & Reason clothing can only be purchased online. Standard shipping time is 3-5 business days. Customers can use the code NDSS25 to receive 25% off their purchase and free shipping from now until the end of the year and 10% of the purchase will be donated to NDSS – this applies to any item other than NDSS signature t-shirts.

Click here to visit the Rhyme & Reason website (and see the cutest little model EVAH).

Click here to view photos of the NDSS Signature t-shirts on Facebook (if you can't see them, "like" the National Down Syndrome Society page).

And here's the newsletter, featuring another little surprise quite prominently.

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It's been super fun participating in this project and I'm so proud that we were able to help NDSS, in our small way, to raise awareness.

Plus, I got to tell you something awesome in a really unique manner.

If you missed it, GO CLICKY-CLICKY THE LINKS!

And, please, if you like the shirts, buy them! I absolutely love ours.

Thanks for playing, y'all. :)

What I Like

What I like about this Thanksgiving is that my little fam is all together.

Sure, BD is at work right now, but he'll be home soon and, hopefully, phone calls of things going haywire will be kept to a minimum.

Last year, he was on a ship on the other side of the world while Playette and I spent the day sightseeing in San Francisco. He never even got the chance to have dinner since he was on watch and we (well, I) decided to forgo anything that resembled the traditional holiday festivities on that day (we did dine with friends the week prior) for fear of getting all sad and not focusing on what we did have. That can be tough, y'know? We're a unit over here and when that unit gets disturbed, it takes a bit of a toll.

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Hey. I don't think I ever posted any of those pics. I was a little overwhelmed last November. Wanna see some?

We stayed at the Marine Corps Memorial Hotel downtown. Great hotel, great location (the happy hour and breakfast buffet are a nice touch, too). Playette liked the mascot statue in the lobby.


We dined that night on yummy Italian fare. I think we split a plate of gnocchi.


In the morning, we went to Pier 39 where we took a boat tour around the bay.





I remember that I had to make the decision to put my camera away after the tour because crowds + squirmy, inquisitive kid + 1 adult meant something had to give. We did end up going on the carousel though. And also some movie thing. It wasn't a long deal, so maybe a 3D/4D suck-the-money-out-of-a-parent's-pocket feature? I can't recall. She did sit through the whole thing though. I was really happy about that.

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So I'm excited that today BD gets to eat and eat until his heart is content. We don't even have to cook or travel far, so that makes it even better.

My co-worker/friend has invited us to her house and she already has most of my donations. All that's left for me to bring is the carrot cake I made last night, some whipped cream for the pies, and my tupperware.

Because you know I'm bringing stuff home to nosh on, right?

The menu we planned includes things like two fried turkeys, ham, mac and cheese, dressing (I call it stuffing even though it's in a pan and not a bird, but we've agreed to disagree), greens, sweet potatoes (she swears by the kind from Honeybaked Ham so that's what I bought instead of making my own; we'll see), rolls, and...ok, I know there are sweet potato pies and my cake for dessert as well as a million other things, but I'm drawing a blank. It's too much food though, trust.

Oh! I did contribute cans of cranberry sauce, too. Because this girl here? Likes to cut the jelly along the ridge lines. I will never not like to do that. Fancy homemade stuff is fine and all, but I needs me some ridge-lined jelly.

I spent some time yesterday brainstorming on holiday card ideas. For a sorta-Scrooge, I am way into that and I can't even explain why.

We have lots going on for the next month. Good stuff to wrap up the year quite nicely. I even have a dress to go with those sparkly shoes and I can't wait to put them on together to ring in the new year while celebrating the nuptials of a good friend. Yay for parties and glitter and new beginnings!

I'm looking forward to today. And many tomorrows.

I hope that you are, too.

And please hope along with me that today is NOT the day that my cake decides to suck. Does anyone else get nervous like that when bringing food to someone else's house?

Giving In

I was going to wait to share Playette's costume until later in the week, but then I saw this photo that was taken yesterday at the festival we attended.

Resistance was futile.

She's too stinkin' cute to keep secret.

Check out our little peacock/butterfly.

Sneak Peek

We took Playette to a party today. It was free to military families and gave us an excuse to try out her costume, so we indulged.

It didn't end up being as fun as the flier indicated, but it wasn't awful and we got some nice family time in. I figure that's better than passing out on the couch while watching crap on TiVo/college football, which mayyy be what we might do most fall Saturdays.

I'll never tell.

I freaking love her costume. Love, love, love. I claimed it last year after a friend had it on her daughter. We're no strangers to going green with the costumes. A couple of years ago, that same friend passed the insanely cute Nemo on to us and then we paid it forward to another friend. This year's costume already has a home for next year and I think that's great. Too bad women don't share wedding dresses the same way. Imagine all the money saved!

I love saving money. I will talk to anyone anytime about saving money. Trust.

Anyway, here's your peek. More to come as the big day approaches.

Hint: She thinks she's a butterfly. She's not.

More Buddy Walkin'

On October 1st, we attended our very own local Buddy Walk. Imagine that, not having to travel by bus or plane! We didn't even have to drive more than about 10 minutes each way. Craziness.

It was the first day I remember really feeling like fall. And when I say that, I mean it was cold. I realized I had reached another weather milestone. Unlike when we were in The Land of No Seasons, it was going to go from oppressively hot to insanely cold. And I was going to have to learn how to deal with it. Bah.

I know. I'm a wimp.

So, yeah, Buddy Walk morning was brisk.

But it was gorgeous.

Playette got out of the car feeling nice and good.

She's on display, on display, on display.




We checked in, got our bag o' goodies and started with some face painting.



For some reason, Playette's ended up on her hand instead of her face. I'm not sure why I got hooked up and she didn't.

We didn't dwell on that mystery. Instead, it was off to the sidewalk chalk.


Not long after, it was time to start the actual walk. I really love the location of this Buddy Walk. It's scenic, central, and so many people come through there to walk dogs, have parties, work out, or to use the playground that I actually feel like that by having it there, some awareness is raised. People have to ask, "I wonder what's going on over there?" or "Who are all these people in matching shirts?" and I think that's really cool. I know that not every walk can be in a place like that, but it's nice that it can happen.

We did the mile-ish trek around the lake, checking out signs along the way that told stories of people with Ds of all ages. I had considered filling out the form so that Playette could have one, but I got a big, fat case of Something Shiny!Over There! and was distracted enough that I missed the deadline. Go, me.

When our loop was complete, we gorged on pizza and oatmeal pies.

Ok, maybe that was just me with the oatmeal pies, but still. Everyone else could have had some, too. They just need to learn to move quicker.

There was music throughout, with performances by cheerleaders and a dance team. We got to meet new peeps and spend time with friends. Playette also made sure to get her money's worth out of the bounce house.

Speaking of getting one's money's worth out of something...Sheree, if you're reading, please know that we squeezed every moment we could out of those shirts from last year. Both Playette and I were struggling to keep our navels covered. Now that's the mark of a good tee! Still useful and well-loved. We'll surely re-purpose those. Thank you, again. I wish we could be there with y'all again this year. Also? I totally wore those striped socks to the NYC Buddy Walk.

All in all, another great day. So great, in fact, that I came home and crashed for the rest of the night. Party animal. Woot.

I didn't think it was possible, but...

It got better.

Just when I thought gymnastics couldn't possibly entertain me any more (see: "triangle roll" from last week), I paid the registration fee and we were promptly given this to change Playette into:





Sassy!

Wednesdays are hereby declared as the most awesome-est.

Dude. Seriously. Just for the uniform alone.

Take Two

And here shall follow another post that proves that 31 for 21 doesn't have to include all Ds-related posts all the time. Because this one here? All about me.

Yes, again.

I'm pretty sure I only have 46 chromos, but no one's ever checked. Who's to say I'm not one of those people that doesn't find out until later in life? Ya never know.

So, today was one of those rare, awesome days that BD and I have off from work and Playette still has school. That almost never happens.

We got up and tag-teamed her right out the door before deciding that maybe a walk would be nice. And then when we were half-way home, I got the genius idea to...double the distance. Good grief. I just couldn't leave well enough alone, huh? It wasn't one of those situations where you could just change your mind mid-way either. I added a circle. A really, really big circle. With no short-cuts. One we started, that was it. We had to finish.

When we got home, I raced to shower because...

1. I had a massage appointment! Woohoo! It was the result of what I like to call the Summer of Groupon. I bought so much crap, I swear. And now we are in the Autumn of Using Everything Up Before it Expires.

Then I did something not nearly as fun. I went to sign Playette's IEP. Booooo. I got annoyed and kinda lost my zen-like state.

2. But then I went and got cookies! The local bakery that is known for its workforce of people with disabilities was right next door to the offices, so I just had to go. You know, in the name of Ds Awareness Month and all. I'm all about doing my part.

I got home and watched a little TV with BD, ate some lunch, and...

3. Went to get my hair done! (I hope you're all yelling appropriately when you see these exclamation points. This is exciting stuff.) The experience itself was less-than-awesome, other than the hair washing part - I love that, but the results were just what I needed. See, lately, I've been doing what I like to call the Lazy Brush-Over. I just kinda do the top of my hair. Whatever goes on underneath remains a mystery. Until I go to comb it and it takes 30 minutes of pain-inducing raking. It's a mess and I bring it on myself. With that in mind, I decided to get it temporarily straightened using a blow-dryer and scalp-scalding temperatures. I should have taken a before pic, but even I'm not that brave. Just know that it was an afro on it's best day and then remember all I mentioned about not combing it. Then make that picture in your mind 10 times worse. That was me.

And this is me now:



It's not flashy or glam, but I can get a comb through it. That's huge. And I'm good until it rains or I sweat. That equals about 12 hours, I'm thinking.

I attempted to have BD take the pics so it wouldn't be me doing goofy self-portraits in the bathroom mirror, but my husband and I had some creative differences. No worries. I love him for more than his picture taking abilities, thank goodness.

I still have my San Antoni-toes, but hey...I got a lot accomplished today. I'll get that pedicure in there sometime soon. That's a promise.

And I won't post pictures.

Well, maybe I won't.

Don't be mad. I have some pretty k-a feet.

The Rest

So, remember that whole trip to NYC for the Buddy Walk?

Well, when our fun-filled Saturday was over, we still had most of Sunday to spend in the city.

After, once again, housing the breakfast buffet, we headed out. We had decided that we'd keep the day pretty Playette-centric.

First stop, FAO Schwarz.

It was a long walk from our hotel to there, so it was a welcome surprise to come across a market all down 6th Avenue. We stopped at a couple of places, drooled over some of the food being sold (only not partaking because we had just eaten) and ended up with new sunglasses for the bigger two of us. Five dollar bucks for mine. And they're cute. Score!

We eventually made it. I was whooped. Playette was rearing to go.


Check her out. This makes me laugh. "Dreeessss. Dreeessss. Dress! Cheese. (strike a pose)"


I have no idea who taught her that little pointed toe move, but she likes it. A lot.

Once we moved past the dresses, I just kept the camera rolling because she was funny to watch as she explored.


Don't worry. I went back and put everything back.

When I found my fam again, they were here:


Playette and I got down to our socks right after this and did some horrible big piano playing of our own for a while.

We thought about purchasing the floor model for the low, low price of $250K, but decided that eventually owning a home might be the more fiscally responsible option.

We are such dillhole killjoys.

To get the festive mood back, we played around some more before heading over to Rockefeller Plaza to tour an exhibit on education...


(I couldn't resist the scramble board.)

...back to Times Square for a Thai food lunch, people watching...


...and, finally, the pièce de résistance:


My little cell phone camera does this lighted mammoth no justice. Playette was excited as we stood in line (translation: she thought she was too good to wait and tried to bust ahead) and quickly pointed out the car with "Lala" on it.

That stumped us. We kept looking and looking, seeing Dora, well, nowhere.

Finally, I spotted her. Way up at the top, in the tiniest corner of a Nickelodeon-themed car. I can't believe this kid is supposed to need glasses. She wasn't wearing any at the time. Hm.

So, lucky us, for the next 15 minutes, we got to hear "Lala! Lala!"

And of course it's first come, first served. You can't just want "Lala" and get her.

I felt really bad by the time we boarded and missed it by one. She had to watch "Lala" go round and round in front of us the entire time. Womp, womp.

BD and I were ok with what we got though. What self-respecting child of the 80s wouldn't want to rock the Mystery Machine?! I mean, really.


They got a really cute picture of all of three of us in the ride, but, uh...it would have cost more than our lunch so...sorry.

It was another great day. We left there, grabbed our bags from the hotel, I went to get some bagels to bring home, we boarded the bus, and actually had a really decent ride back home.

And that's all I have to say about that.

Now that's it's a week past our local Buddy Walk, I hope I can get that in sometime soon, before we head to our third and final for the year.

Buddy Walkin': NYC Part II

First off, HI, ZOE!

Or do you spell it with a "y"?

If so...HI, ZOEY!

Zoe(y) is the nice lady we meet right after walking up the hill to the lovely home base of the NYC Buddy Walk and wandering just a bit. She was there as a volunteer, meant to assist folks just like us who needed some direction.

But what was so unique about this direction-giver is that she recognized us.

Wha?! Little ol' us?

Yup, Zoe(y) reads along here and I really wish I would have taken more time to talk to her then. Since I didn't, I hope this salutation helps to show that you're appreciated. Thank you not only for joining us in our journey, but also for all you do to support the Ds community.

Pretty quickly after that chance meeting, we were able to get all registered and shirted up. The six of us were all part of Team Signing Time, so that meant Playette got to meet up with her idol right away since it was almost time to take a group photo.




They are just too cute.

We even had the good fortune of meeting Rachel's family. Here's Playette with her three daughters, Laura, Leah, and Lucy.


The look on The Littlest's face is her realizing that she's not, in fact, Signing Time's one and only love.

Playette followed Rachel/Signing Time around a lot. So much so that by the time we looked up (and had finished some popcorn and cotton candy, natch), we had missed the start of the actual walking part of the walk. So, the group of us rushed over to the starting point, hoping that we'd figure the path out somehow. Good thing it didn't turn out to be too difficult after all. Plus, the mob moved slow enough that we caught up pretty quickly.

I loved taking in the sites of Central Park. All of the runners made me want to run. It's just such a pretty place in the middle of the big city. It's hard for me not be awe-struck at least once during every trip.

BD was carrying Playette in a backpack while we strolled and she made good use of her time by passing out about 3/4 of the way through the loop.


She woke up in time to get her medal at the finish line though. Check her out, nice and refreshed!

Which was a good thing. Because it was time for the Signing Time performance.

It was wonderful, as expected. Rachel even called out to Playette a couple of times from the stage, which, surprisingly, didn't make her head explode right then and there.

She did have the idea, though, that she belonged on that stage, so I had to go grab her back from trying to do just that at least twice during the concert.

Leah performed with Rachel for most of the show and then Lucy came in for the last song. Which, um, had me bawling.

Couldn't. Help it.

Great, great, great time. We enjoyed it so much, we already have plans to see another concert again very soon.

To keep the momentum going - I think we were all ready to celebrate that the promised rain failed to make even a teensy appearance - the DJ got to work.

My girl loves to bust a move. It's almost like she's challenging BD to a battle at one point in here.


There was lots more move busting and snack eating before we realized that, as usual, we were among the last people there. We know how to shut down a party, yo. We left to the sound of balloons being popped for clean-up.

The rest of the evening was spent noshing on noodles here and slurping on sundaes there.

We even had a Nina Garcia spotting.

All in all, a great day.

Thank you so much to the SkaSka's for joining us!

Buddy Walkin': NYC Part I

Oh, yes. It's me again. I'm crazy back.

This whole working in an office - well, hopefully untainted trailer - thing? It's pretty draining. And hostile. But that's a post for another day.

And days are something I have plenty of, actually.

Because it's October.

Yes, already!

Today marks day one of Down syndrome awareness month.

And with that comes one of my favorite ways to celebrate and advocate: 31 for 21.


Grab This Button


I've been doing this for a while now. I'm thinking since I started blogging back in 2008. The way it works is that I, along with many other bloggers, commit to writing every day in October (31 days) in a show of solidarity and support for those with Trisomy 21 (Ds results from having three of 21st chromosome).

If you're interested in joining in, go see Tricia and sign up. You only need a blog, not a direct connection to Ds.

Even though if you're reading here? Allow me to be your secondary connection. I've checked with Playette and she's cool with that.

LEZGO!

So, my first post is so late. Of course. But right on time for this effort, which means my procrasti-fatigue paid off in a way. I kept meaning and meaning to write, but with so much to say and photos and videos (which you all totally deserve after a pretty desolate September around these parts), I knew it would take time that I just didn't have.

But I got up early today. Just for you. We have our local Buddy Walk this morning, but there's still plenty of time before that. I went to bed at like 9:30 last night so getting up at 6:30 felt like sleeping in and that I better go do something productive already.

Since milking a cow was not an option, here I am.

Last week was an adventure. For anyone that follows me on Twitter, you got a bit of a participation explosion from me last Friday night. Why?

BECAUSE I WAS ROTTING ON A BUS!

What seemed like a semi-good idea in the beginning turned out to be a version of torture for me. I mean, logistically, it made sense. We wanted to go to NYC for the Buddy Walk. Rachel Coleman was performing.

[I kinda like seeing my kid lose her ish for Rachel. And then when she gets extra-stalkery, I have to step in, but still. She loves her some Rachel and Signing Time.

Actually, she doesn't call Rachel by name anymore. She calls her "Signing Time." Which would be rude if it wasn't so damn funny to watch her do. Actually, it is still rude, bur Rachel's very, very cool about it.]

Since moving from California, almost anywhere on the east coast seems close. Because we're not a country away from it, right?

NO.

New York is not close. Trust me. And the drive to get there from here is painfully boring.

And that's why paying someone else to drive us there sounded positively brilliant! Because, hey, we'd leave at midnight, a mile from our house, we'll save money in the end between gas/tolls/parking/wear & tear on the car, we'll surely just wake up, fully-rested, a few blocks from our destination. What could be better?!

The answer is: a plane. A plane would be better.

A plane doesn't take 6.5 hours. A plane would have only cost $30 more per person. A plane doesn't freak you out by taking you the wrong way in the middle of the night. A plane doesn't make that rumprumprump sound that scares you out of your 3 minute nap because the only time you should hear that is when approaching a toll or running off the road and YOU'RE NOWHERE NEAR A TOLL BOOTH!

Yeah, I was grumpy. And because the last rider had spilled coffee in the seat next to BD, Playette was with me most of the time and she was a slightly less than stellar riding companion. Apparently, between the two of us, one of us needed to stand watch, so, as the "adult", I took one for the team. Yay, me. With no sleep, I was a flippin' peach when we finally disembarked in front of the peep show behind Old Navy.

Classy, I know. You're totally jellus.

I must mention the other reasons we decided to go. Some of our friends have an 18-month-old who also loves Signing Time and since they live in NY, we'd be able to enjoy the day with them. Plus, Central Park just sounded like an awesome place to have a Buddy Walk.

Aaaand, Playette's picture was chosen for the NDSS video in Times Square.

Had to be there. Had to.

Don't know about the video? Here's a clip from the official press release:

"The photo...was selected from over 1,200 entries in the NDSS worldwide call for photos. Over 200 photographs will appear in the video, which will be shown on the larger-than-life MTV plasma screen, located in the heart of Times Square."

Yeah, we had lots of reasons to go.

And, honestly, after that bus ride, things got much better.

We got our bags and walked the short distance to the hotel. Playette was thrilled to get her land legs back and had a ball zipping down the clean and mostly-empty city streets. She did find it necessary to point out to me the people that were sleeping though. I wasn't quite ready to explain homelessness.

When we got to the hotel, they had a room ready (bless them!) and extended the breakfast buffet to us (totally not required, but greatly appreciated). Grateful, we hustled upstairs and took naps before waking up, getting dressed in our gear courtesy of Sheree, housing the buffet, and walking to Times Square.

When we got there, we immediately picked out our peeps, posted up underneath the large screen with the gold frame around it that reminded me of the mirror my mother loved so much when I was in high school and college and that I kept in my own home for many years.


Yup, right between T.O. and LaLa. That was the spot. Superstah!

I took that last picture on Sunday though. Because on Saturday, I was too busy running my mouth to all the people around us like Ben's family, out celebrating his first birthday in full force, and Jewel's whole group of Gems. They really came out to represent for those kids and I loved seeing how much support they had.

I'm doing some thinking right now and choosing not to write it for the world to read, but if I didn't write something in this space, I'd be mad at myself. Infer whatever you wish. How's that?

Anyway.

The video lasted about 20 minutes and Playette showed up right in the middle, with her cute self. I was riveted the entire time because I could not, for the life of me, remember which photo I had submitted, so I was freaking out that maybe I'd miss her. Really? I thought I wouldn't recognize my kid? I'm such a wack sometimes.


When the video is available online, I'll share the link.

If my mother were alive, I probably would have gotten popped right in Times Square for submitting a picture of Playette sitting so unladylike. Oops. Still adorbs though, right? I promise to keep her out of clear heels, 'k, Ma?

Our friends arrived just as the first showing of the video was wrapping up, so we watched the second one, too, before heading to the buses that would take us to the main event.

This seems like the perfect place for a cliffhanger, soooo...

Stay tuned for Part II!

And, if you're so inclined, any donations to any Buddy Walk are tax deductible. If you go to one in your area, let me know. They're fun. We went to three last year and will do the same this year.

If you work for the Feds, both NDSS and NDSC are listed to receive CFC contributions.

When More is More

Today, the Littlest decided that she'd spice it up a bit.

Maybe she's trying to remind me of what things will be like for me when I go back to working full-time outside of the home next week.

I pulled a new dress out of her closet this morning for her to wear. It was one of those moments where you have to weigh out the pros and cons...

Yes, if she wears this, it may get messed up during the school day.

But, if she doesn't, it may end up being one. more. thing that gets outgrown with the tags still on it.

I threw caution to the wind. We'll see how that turns out.

But here's the thing, much like the participants in any number of makeover shows, once she had that new dress on, her whole demeanor changed.

She went into her closet and grabbed her laptop.

Then she went into my closet and snagged a purse.

Partner those with her (old) glasses and she was ready to go.




I hope that I'm half as put-together on Monday.

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I cried at drop-off today. I couldn't help it. It was just a few tears, but I couldn't hold them in.

The teacher, who I appreciate very much, was telling me about some of the behaviors that Playette has been exhibiting lately.

Now, I had heard the other teacher mention some things yesterday during pick-up, but I think she was trying to spare my feelings a little too much and kind of acted like things weren't as bad as they are.

The morning lady (they work together in the room for most of the day) was a little more blunt. Which was fine. It's just that I guess that I've been living in a bit of a fantasy lately. I mean, I have this kid who has been just...nice...for so long and hearing that she's pushing and hitting other children? Ugh.

I understand that her chronological age does not match her developmental stage, but still. I thought we got the "terrible twos" thing last year. Apparently not. That was just a preview. She's exhibiting that sort of behavior now in the classroom and I realize that I'm not taking it well because I really, really want her to just be.

Do you know what I mean?

I don't want her to stick out (more).

I don't want her to become a problem.

I want everyone to wish that they had her in their classrooms.

It's that thing about being different already and not really wanting to give her the leeway to be the same as other children in that kind of way.

While it's fine for any other child to have behavioral issues attributed to the stage they're in, for a kid that's already set apart, it's just another strike in my mind.

It's kinda like me not being able to be relaxed in college about breaking a rule....there was no one that anyone could confuse me with as I was virtually the only Black female for most of the time I was there.

So, yeah, it's deeper than "we don't hit" for me.

It's more like, "Please, baby, be nice to your friends today, ok? Be on your very best behavior, alright? Look at me. Can you do that for mama? Please? No, really, I'm serious. Look at me. Do you understand? We're nice to our friends. Hands are not for hitting. Let's use our words today. Look at me. Tell me you understand. Ok? Can you promise me that you'll be the best girl today?"

Ugh.

That is so unfair. I know that.

But that's real life.

Snippets

I believe that I owe you all another video. Not that anyone's asking for one, but I kinda prefer telling the school stories "in person" now. That saves me a heck of a lot of writing, for one. Yesterday and today, there were some new developments. And I'm proud of myself.

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On Saturday, I had a commitment with the Navy Reserve. As I've mentioned before, this is not a frequent occurrence, but this summer, there seems to be a lot more going on than usual. In fact, I have meetings this coming weekend as well.

So there I am, early in the morning, putting on my khakis, and Little Miss Possessive herself (no, really, she doesn't want servers to take away our plates, people to come too close with their carts in the grocery store, or luggage handlers to take our bags in the airport) starts giving me the "No! No! No! No!" complete with hand gestures. I'm wondering what in the world I've done to get this treatment and then she says, "Daddy's pants!"

Ah, yes. Of course. She thought I was stealing her dad's clothes since this is what she always sees him wear and never sees me wear.

Smart kid.

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We went to the ENT last Friday for a follow-up to the sleep study. Apparently, her episodes were extremely insignificant. No T&A or CPAP for her, for now. We go back in December.

That reminds me. It's about that time to start scheduling the next round of appointments. We haven't been to the Cardiologist since moving here so I think that visit should get some priority. Hopefully, it'll be just as uneventful as our past visits have been. But it is always nerve-wracking to go to someone new. Who knows if they'll agree with the other doctors? What if they want to do something we're not expecting?

Ugh. Why did I just go there? Borrowing trouble.

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Playette got new glasses when we were in San Antonio and the lenses are finally in. So stinkin' cute. I like them so much better than the sports goggles on her. I guess now you want a pic, huh?

All the ones I have in my phone are blurry. I'll work on getting a clear shot posted soon.

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In the meantime, here she is this morning, sans glasses, after deciding that she was more than ready to head out to school. She grabbed the garage door opener and the car keys, along with my sunglasses that she promptly placed in the headband position. Good thing I was right behind her because the garage door was up and she was out and at the driver's side door in no time. I guess she thought she'd do the driving today.

5 Years